CDH Stories
Lyla’s CDH Story
Born with severe Congenital Diaphragmatic Hernia (CDH), Lyla faced incredible odds from the start. She required ECMO just hours after birth and underwent life-saving surgery at only 5 hours old. After weeks of intensive care, breathing support, and overcoming feeding challenges, Lyla proved her strength. Now thriving at six months old, her journey is one of resilience and hope. Read Lyla’s inspiring CDH story
CC’s CDH Story
We cannot thank the CDH staff at Boston Children's Hospital enough! They saved CC's life, and after almost 114 days, we are home.
Abel's Story - Congenital Diaphragmatic Hernia (CDH)
We were asked not once, but five times if we were “sure” we didn’t want to abort the pregnancy. Our firm answer was no.