She has defied all the odds. Home is where she belongs with her big brother, Leo. We are forever proud and grateful for her. There were many times we thought it was the end. We can't say thank you enough to all the healthcare workers for saving our warrior princess.

Today, she thrives and still beats all odds. My baby is 2 now, but she's still our Tiny Hero.

Fast forward two months, and Aubrey is a happy and healthy six-month-old. She is eating pureed fruits and vegetables along with breast milk, working on rolling over, and having the time of her life in her new bouncer.

God has been so good to us throughout this journey, and we could not ask for a better turn out for our baby girl!

Although we will never know exactly why Carsten was born with CDH, we do know that he has shown us a kind of strength we did not know existed and the sheer determination to fight no matter what.

With every beautiful breath she takes and every high-pitch squeal we hear, we are reminded of God’s grace and the amazing work He is doing through Dr. Kays and the JHACH team.

We left the hospital at 41 days. She came home on .1 liter of oxygen and was off it in 3 months. Now, she is seven months and a thriving little girl.

Nolan went home with no equipment and thrived. He continued to have digestion issues, reflux, but no one would know he has gone through so much. He is truly a Tiny Hero.

Today, Arabella is absolutely amazing. Of course, she may have minor issues in the future, but if this terrible defect was a magazine, Bella would be on the cover. To think we were so close to losing her. So close to not giving her a shot to survive.

The time in the hospital felt forever but doing the research and talking to other people who had gone through CDH, and reading the stories on the Tiny Hero page helped me a lot. My baby girl is the strongest person I know!

CDH is not a death sentence. There is so much hope for these kids. You just need to believe in them and find a medical team that believes in them as well!

If you didn't look at my X-rays or the scar on my belly, you would never know there was anything wrong with me. I did so unexpectedly wonderful that the hospital kicked me out just before I turned 3 weeks old. The doctors have no explanation as to why I did so well. Now, do you believe in miracles? I'm living proof of one!

After losing one son to CDH, we were willing to do whatever we had to do to be sure Soren survived. Without hesitation, we booked our plane tickets and made our way to Florida to meet the infamous Dr. Kays.

After we were diagnosed, I spoke to a mom who told me that if God had told her the outcome, it wouldn't have allowed her to entirely rely on Him for the months of the unknown. God led us to JHAC and gave us the strength we needed each day to make it.

Jaxon recently turned one and is the happiest boy we have ever seen. He brings so much joy into our lives every single day. He's had some minor bumps in the road along the way, but each time he has bounced back stronger than before. He continues to amaze us every day with how far he has come, given where he started.

They began to explain to us that Haydn had a congenital diagrammatic hernia and would need a repair. They further explained that given his age, the chances of his survival were 50%. As I attempted to understand everything that was shared with me, I had no words.

Later a Facebook friend of a friend told us her story of her CDH baby and how they found hope through Tiny Hero and a CDH specialist, Dr. Kays, at Johns Hopkins All Children’s Hospital

Once we got to Gainesville the doctor there new exactly what it was. He wrote on a piece of paper, CDH. I had no idea what that even was. He told me it was a 97 percent survival rate but she would need surgery and a long hospital stay.

Our Strong for Penelope supporters and the CDH community have shown us so much love over this past year it is incredibly humbling. Without their support we would not have been able to relocate the 1,861 miles away from home with half of our family in St. Petersburg Florida and the other half in Pierre South Dakota.

When we received the news of the CDH, we were so devastated knowing the journey she would have ahead of herself, but we also were filled with so much hope because we knew that with the right team, she would do great.