We knew we would be looking at an extended NICU stay with our CDH baby. What we didn’t know is that we would spend 323 days in a hospital 623 miles away from our home. While this time was unexpected and quite possibly the hardest thing we’ve been through, we found ways each day to make the best of a tough situation.

Once your baby with CDH is finally ready to go home, you will have a big decision to make before leaving the hospital. That decision is: Who will continue providing their medical care locally? Who will be their pediatrician? Here are some tips to help you make that important decision.

Everyday our community strives to redefine impossible. We change the mindset that there is no hope for CDH. We define CDH, not as Congenital Diaphragmatic Hernia, but rather as a Community Defined by Hope.