Sonny’s CDH Story

Dear Sonny,

From the moment you entered this world, you showed us the true meaning of strength and resilience. When we received the news about your Congenital Diaphragmatic Hernia (CDH), our hearts were filled with fear and uncertainty. But amidst the chaos and worry, we witnessed a miracle unfold before our eyes.

You were whisked away in a helicopter, your tiny body fighting for every breath, and the doctors warned us of the challenging road ahead. They said you might not make it through that first night, and our hearts shattered. Yet, you defied the odds, surpassing their expectations and proving you had an unyielding spirit.

Days turned into weeks, and weeks into a rollercoaster ride in the NICU. We faced setbacks, moments of despair, and tears that seemed never-ending. Each step forward was met with two steps back, but through it all, we held onto hope and clung to positivity. We saw your tiny body endure countless procedures, supported by an army of dedicated medical professionals who worked tirelessly to give you the best CDH care.

Those thirty-four days felt like an eternity, but we witnessed the power of love and determination as we watched you grow and thrive. You fought with a strength that belied your size, and your resilience inspired us all. We celebrated every milestone, no matter how small, knowing that each one brought us closer to the day we could finally take you home.

Now, my dear child, you have turned one, and our hearts are overflowing with gratitude and joy. You have blossomed into a perfect, beautiful soul, reminding us that life's challenges can be conquered with unwavering faith and a positive mindset. Your presence in our lives is a daily reminder of the incredible strength that resides within you and the incredible love that surrounds you.

As we look back on those difficult days, we are filled with awe at your indomitable spirit and the resilience of the human body. You have taught us invaluable lessons about courage, patience, and unwavering hope. We cherish each precious moment we spend with you, knowing just how truly special and remarkable you are.

You, my Sonny, are a beacon of light, a symbol of triumph over adversity. Your journey has united us as a family, and together we have emerged stronger than ever before. As you continue to grow and embrace the world, know that we will always be by your side, cheering you on and celebrating your every success.

With boundless love and pride,

Mommy and Daddy