CDH Stories

Liver Down - Left Sided Elizabeth Cummins Liver Down - Left Sided Elizabeth Cummins

Zyaire’s CDH Story

Today, Zy is a happy, mostly healthy baby. He loves to play with his siblings, clap his hands, and climb on everything. He has mastered eating by mouth, crawling, pulling himself up to stand, and walking while holding onto something. For everything he has been through, he is the happiest baby we know, and we couldn’t be more blessed and in love!

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Liver Down - Left Sided Elizabeth Cummins Liver Down - Left Sided Elizabeth Cummins

Ellie’s CDH Story

Ellie loves spending time outside, swinging, reading, kicking everything in sight, and singing in the car. We wanted to write this story to give other families hope, especially those facing multiple diagnoses. CHD and genetic conditions on top of CDH can be complicated, but these babies are so strong. We are here to support everyone facing this scary diagnosis!

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Liver Down - Left Sided Elizabeth Cummins Liver Down - Left Sided Elizabeth Cummins

Abel’s CDH Story

Once I knew this was going to be my life as a CDH mom and that there would always be medical ups and downs, I realized it's all about how you handle each bump in the road. Being a mom of a child with special medical needs made me so much more grateful for all the little things and milestones of Abel’s life!

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Liver Down - Left Sided Elizabeth Cummins Liver Down - Left Sided Elizabeth Cummins

Weston’s CDH Story

When I tell people about his story, they are shocked that this is the same baby. He is a thriving, happy, and healthy little guy. Weston is a speedy crawler and pulls himself to stand. He just started cruising along tables and couches. Some of his favorite things include watching Miss Rachel on TV, chasing after our dog, playing with cars, eating French fries, and laughing at his big brother!

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Liver Down - Left Sided Elizabeth Cummins Liver Down - Left Sided Elizabeth Cummins

Sonny’s CDH Story

Sonny has blossomed into a perfect, beautiful soul, reminding us that life's challenges can be conquered with unwavering faith and a positive mindset. Your presence in our lives is a daily reminder of the incredible strength that resides within you and the incredible love that surrounds you.

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Liver Down - Left Sided Elizabeth Cummins Liver Down - Left Sided Elizabeth Cummins

Presley’s CDH Story

She's now a feisty two-year-old who keeps us on our toes. She loves to do anything in the water, including swimming, going to the lake and feeding the ducks, or, when we're lucky enough, going to the beach. We cherish every moment we get with Presley because it's one more moment we weren't guaranteed, and that makes every moment that much more special!

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Liver Down - Left Sided Linda George Liver Down - Left Sided Linda George

Kai Michael’s Story - Congenital Diaphragmatic Hernia

To think back to November 2022, when the doctors told us to terminate, to now a happy, healthy, thriving little boy is such a miracle. For all of those parents having to endure the same battle we did with CDH, don't lose hope. We have learned that CDH has a wide variety of outcomes. The numbers listed are just that, numbers. These warriors we are blessed with are that and so much more!

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