CDH Stories

Liver Up - Left Sided Elizabeth Cummins Liver Up - Left Sided Elizabeth Cummins

Herle’s CDH Story

I found Tiny Hero’s community on Facebook. I wrote my story and asked for stories of hope in return, and the members did not disappoint. I got overwhelmed by the response and copied all the stories and images into a document that I printed and carried with me everywhere. I read it so many times the pages got worn thin. It was a physical hope to hold on to.

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Liver Up - Left Sided Elizabeth Cummins Liver Up - Left Sided Elizabeth Cummins

Copeland’s CDH Story

Now our sweet boy is almost seven months old and is starting to rock his feeds orally with only needing to use the G-tube once through the day and sleeps all night, so he is fed through the tube at night. He is finally reaching his developmental milestones and is such a sweet and happy baby.

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Liver Up - Left Sided Elizabeth Cummins Liver Up - Left Sided Elizabeth Cummins

Rhiley’s Story - Congenital Diaphragmatic Hernia

For all of the CDH parents out there currently in the thick of it like us, know that these babies are stronger than you can imagine. They fight like hell and are so resilient. Also, remember to give yourself grace and know that a whole community is available to help get you through what is most likely one of the hardest things you will ever experience.

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