CDH Stories
Nolan’s Story - Congenital Diaphragmatic Hernia (CDH)
Nolan went home with no equipment and thrived. He continued to have digestion issues, reflux, but no one would know he has gone through so much. He is truly a Tiny Hero.
Summer’s Story - Congenital Diaphragmatic Hernia (CDH)
“Her stomach was up next to her heart. There’s a hole in her diaphragm. Reduced lung growth. Other organs in her chest. He said she won’t be running any marathons. One of us asked... ok so is that it? Just maybe no sports? She’s ok right?”
Henry's Story - Congenital Diaphragmatic Hernia (CDH)
I was given the option of sending him with a 5% chance of survival and risk him dying alone or I could hold him while he passed. I had to send him, it was never an option for him to die.
Zayna's Story - Congenital Diaphragmatic Hernia (CDH)
She actually SCREAMED. We were told that wouldn’t happen. We were told she might not seem responsive or have any of the normal “just born baby” things. But she cried.