CDH Stories
Christian's Story - Congenital Diaphragmatic Hernia (CDH)
He had decided on a name for him as well: Christian Peter, which means strong rock. He then handed me a picture of our son that was taken by a very nice volunteer with the March of Dimes. I clung on to this picture for the next 24 hours as I lay in my bed, unable to visit my sick baby boy.
Kennedy's Story - Congenital Diaphragmatic Hernia (CDH)
Kennedy's corrective surgery was at 5 days old. There was enough diaphragm left to sew it together instead of using a patch. She did well but struggled with eating and reflux. At one month old, a feeding tube was placed and a Nissen procedure done. We left the NICU and headed home at 2 months old. 7 surgeries later and 11 years old, we are beyond grateful...!!!
Stephanie's Story - Congenital Diaphragmatic Hernia (CDH)
Steph is now 22 and beautiful, with no apparent side effects at all. We were told she would never be able to burp. Oh boy were they wrong!!