I had never heard of CDH before that day. Our original OB was wonderful and got us into a specialist the next day. We spent the next 20 weeks attending weekly appointments and meetings with different specialists before Bailee was born at 39 weeks in a pre-scheduled delivery.

She might be small, but she has a strong soul. She fought for her breath and her life from the minute she was born and refused to give up. I'm so proud of her and thankful for being her mom. She is a Tiny Hero, and I'm proud to say that I'm the mother of Tiny Hero.

Today we can't imagine life without our Bella. She injects so much love and energy, and shenanigans into our lives. Since we've been quarantined, she's really taken advantage of the extra time we have for her. This time has been so crucial for her development.

Declan is now 16 months and just thriving, and at every appointment, he amazes his pediatrician. We are very proud and thank God every day for our Tiny Hero!

Sawyer went home on day 26 with reflux medication (omeprazole) and has had no issues since. He is now 1, weighs 27 pounds, and is 78 inches long. He's had no feeding or weight gain issues and has eaten over 100 different foods!

She’s our strong baby girl, and we are so proud of our little warrior. We are still shocked and amazed by everything she went through. We look at her everyday thinking back on how far she’s come. We are truly blessed to have our daughter.

He kept on surprising us all, ever since the day he was born. He is such a happy baby. He smiles all the time, and he always has this charming look in his eyes.

Deepti is about to turn 3. She has overcome all her milestones and is now a G-tube graduate! Her latest X-rays revealed that the Gore-Tex patch is stable and shows no signs of reherniation. We are so proud of how she is overachieving in her motor skills and communicates like an adult. She is about to start school and is the happiest little toddler who loves chicken fries, Blippi, and the outdoors.

Today, he is a happy, healthy 6-month old that loves to eat & loves to play. If you didn't know him, you would think he never went through any of it.

There were many hard days, but Elisa's life was and still is 100% worth the fight. Our pregnancy and first year with Elisa have been anything but ordinary, but we wouldn't have it any other way.

Elijah is growing stronger everyday and beating all the odds that were stacked against him. None of this would be possible without the amazing team at Cincinnati Children’s hospital and the Tiny Hero Foundation and their donors.

We were so happy. It was exactly what we had both hoped for. And then, after a few brief moments of joy, we were immediately crushed again. Like before, our tech left the room and came back with the OBGYN. The doctor told us that our girl’s stomach was next to her heart. She explained that this happened because of a hole or defect in the diaphragm.

We have never heard of Congenital Diaphragmatic Hernia before and we were told NOT to Google it. Of course my husband and I did. And in that moment our lives changed forever.

After being born with LCDH and having his intestines, bowel, and spleen up. After 2 ECMO runs, repair surgery, nissen and a g-tube done Carmello is now a 10 year old, 4th grader, and a straight A student.

And when I was between 32-33 weeks pregnant with him, we found out that he had CDH, which is short for Congenital Diaphragmatic Hernia. We learned this occurs when his diaphragm was not formed fully and that he had his intestines in his chest.

You wouldn't know what he has been through looking at him. This kid is the life of the party. He is our survivor, our CDH warrior, our Tiny Hero.

My hope is to be hope for families who question if their survivors will ever get to be where I'm at now. I hope to connect with other survivors who still question why this had to happen to us & ways we can navigate through the PTSD we experience.

His dream is to one day be a sports broadcaster— and he is currently working for our local radio station selling ads and hopefully doing some broadcasting for them in the future.

And so, Dayly received the infamous CDH “line” as she now calls it. The scar that includes her in a special club of survivors.

After 37 long, stressful, emotionally paralyzing, heartbreaking but awe-inspiring days later, our baby girl was discharged and able to come home!