CDH Stories

Liver Down - Left Sided Linda George Liver Down - Left Sided Linda George

Kai Michael’s Story - Congenital Diaphragmatic Hernia

To think back to November 2022, when the doctors told us to terminate, to now a happy, healthy, thriving little boy is such a miracle. For all of those parents having to endure the same battle we did with CDH, don't lose hope. We have learned that CDH has a wide variety of outcomes. The numbers listed are just that, numbers. These warriors we are blessed with are that and so much more!

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Liver Down - Left Sided Linda George Liver Down - Left Sided Linda George

Violet’s Story - Congenital Diaphragmatic Hernia (CDH)

On October 8, after 25 days in the hospital, Baby Violet was discharged from the CDH unit with only 0.1 L oxygen flow. March 14 was her half birthday. She is still a great eater, and she has two teeth coming in. She cries when she isn't being held, but when she looks at me, she smiles bigger than I've ever seen before. I am so thankful for that smile every single day!

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Liver Down - Left Sided Linda George Liver Down - Left Sided Linda George

Eli’s Story - Congenital Diaphragmatic Hernia (CDH)

Eli is now 5 months old and is truly thriving. We know his journey was unique and that not all CDH babies come home without breathing or eating support. For that, we are eternally humbled and grateful. We went through some very dark times before he was born and throughout the early days of his life. I'm here to tell you to have faith—there absolutely is hope for these CDH warriors.

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Liver Down - Left Sided Linda George Liver Down - Left Sided Linda George

Chrissie’s Story - Congenital Diaphragmatic Hernia (CDH)

On June 29, 2020, we were filled with excitement as we headed to the anatomy scan to find out if we were having a boy or a girl. While the scan was going on, we were so happy to see our baby, but suddenly our radiologist said she needed to call the doctor. It was then that we learned our baby girl would be born with Congenital Diaphragmatic Hernia.

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