When we hear the words, “I see a problem with your baby,” everything seems to come crashing down. We’ve included some of the most commonly asked questions we get related to CDH pregnancies and the more medical side of having a CDH baby.

We have compiled a list of questions and concerns regarding delivery that we hear often and hope they will help ease your mind and navigate this diagnosis.

Are you wondering how to help CDH parents? Here are several ways you can show support! Remember, we will find our new normal.

Enrolling your child with CDH in school for the first time can be both exciting and terrifying. You have likely spent the last little bit protecting and sheltering them from germs, been their primary care provider, and the one to kiss the boo-boos. The idea of passing some of those responsibilities on to someone else can be overwhelming.

We're so excited for this year's Tiny Hero Virtual Walk | Run | Bike! By getting involved you can help raise money and CDH awareness in your community. Invite your friends and family to join in the fun and share your Tiny Hero's story on social media!

Many grandparents feel helpless as they watch their child struggle with the shocking news and wonder what they can do to help. We’ve put together some advice to help you navigate your new and difficult role because when handled with care, CDH has the potential to be an incredible bonding experience that only serves to bring families even closer together. 

I’ve put together two lists of what to pack for the NICU. One list is the essentials for mom and dad, and the other list is for things that can help you make the very sterile medical environment a little homier and more personalized—ways to celebrate your little warrior.

You've made it through a CDH pregnancy, delivered a Tiny Hero, sent your baby into surgery more times than you'd like to remember, and finally, after several weeks or months in the hospital, the word "home" was officially mentioned!

If your local hospital has estimated 4+ months, it never hurts to get a second opinion from a top hospital. You might be able to cut your stay in half and increase survival odds simply by relocating somewhere else.

And here we are seven years later. Life has "moved on," but the heart of Tiny Hero hasn't. We created Tiny Hero not only to share Adam's story but to support and celebrate you and your story. Though we may come from all parts of the world, there is one glue that will forever hold us together, and that is the common desire to fight for our Tiny Hero kids.

My family and the rest of the CDH community are here to support you along the way. This is one of the most supportive groups I have ever been a part of. Don't hesitate to reach out when you need help!

There is so much uncertainty and so many questions that still need answers before you can even start thinking about a baby shower. Yet, a baby shower can bring normalcy to a pregnancy that otherwise feels completely foreign.

A lot of factors go into the choice of relocating for CDH care, but here are a few things you may want to consider as you make that decision.

Being in a hospital room loaded down with so many machines that it becomes nearly impossible to find the baby is a parent’s worst nightmare. Hospital equipment can be daunting, but knowing what each piece does helps make a stressful situation a more understanding situation.

It is common for a feeding tube to be recommended until your Tiny Hero can figure things out on their own. In hopes of making this decision seem less scary or foreign, we have compiled many of the most commonly asked G-tube questions for you!

Some of our Tiny Heroes may struggle with speech and language development, and that’s okay! There are many things you can do to help prevent or overcome challenges with speech or language. Here are a few tips and tricks to help your little one learn to understand and use words at various ages.

Upon diagnosis, one of the first things mothers often ask is, “Will I be able to breastfeed?” This is such a tricky question to answer because there are so many factors to consider; however, it is important to know that just because your baby has CDH, it doesn’t automatically mean that nursing will not be an option.

Keep it fun, sneak in calories as you can, give lots of rewards, and trust that it will be okay.