Adaleyza's Story - Congenital Diaphragmatic Hernia (CDH)

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I am a mother of two boys at the time they were 2 and 4 we were all anxious and excited for our Baby girl arrival. The day had arrived i was Programmed for a C-Section, it was a Monday at 9:35 Adaleyza was welcomed to the world while they were cleaning her up they noticed something wasn't right so they rushed her to an X-Ray.

There it was - Congenital Diaphragmatic Hernia (CDH). Everything was up in her chest and her heart was moved to the right side. They notified me while I was in recovery. This was something we weren't expecting, we weren't ready for. My heart dropped. I didn’t know what to do, she was immediately transferred to Texas Children's Hospital.

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On the 3rd day of being born she had her surgery done. I would cry every single day. I had my 2 babies at home and leaving her at the hospital it was tough. She wasn't able to make any noise since she had feeding tube in her mouth and other stuff. It was heart breaking seeing our baby girl like that.

It took her about a week for us to hear her cry. Days passed, it was getting harder my baby boys couldn't understand our every day 40min drive to the hospital. They were long days and they started getting fuzzy but i couldn't divide my self. Baby girl needed me as well as them.

Then the day came she was being released we were all excited, she came home with the feeding tube but i was ok with it. Now she is 17 months. She gets her checkups every month with her surgeon, runs around, likes to eat. I am so grateful to have her here with us. She is a blessing. She has gone thru so much but she is strong. We Love our Tiny Hero.

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Rylee W's CDH Story

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Xavier's Story - Congenital Diaphragmatic Hernia (CDH)