CDH Stories
Hazel’s CDH Story
Hazel was discharged without any medications, respiratory support, or other kinds of wires, just fortified breastmilk. She gained weight quickly and came off the fortified breastmilk at four months old. Hazel turned one this month and she is a very happy, healthy, and active baby.
Emma’s CDH Story
Since we had no idea about her diagnosis ahead of time, nothing was prearranged or planned. We were blessed with friends and a church family that helped us financially. We are thankful for our baby girl, Emma, and would do this crazy all over again for her. She is so full of life and truly one of the strongest girls I know!
Jasper’s CDH Story
Joining Facebook groups and hearing all the positive stories gave me so much comfort and hope in the scariest time of my life, and hopefully, I can do that for others by sharing his story. He’s now two months old and doing great!
Birdie’s Story - Congenital Diaphragmatic Hernia (CDH)
Birdie has been thriving, smiling, working hard with physical therapy and occupational therapy. Nothing can stop this sweet girl! We are beyond blessed and thankful for Tiny Hero and everyone we've met through her experience and look forward to educating and spreading awareness for the CDH community.
Oliver’s Story - Congenital Diaphragmatic Hernia (CDH)
Oliver is the happiest and bravest little boy I know, and he's never let any of this stop him! He's in school and has lots of friends. He is so funny, loves life, and is obsessed with trains. He is truly my Tiny Hero! And an absolute inspiration to everyone who knows him.
Kian’s Story - Congenital Diaphragmatic Hernia (CDH)
He kept on surprising us all, ever since the day he was born. He is such a happy baby. He smiles all the time, and he always has this charming look in his eyes.
Nolan’s Story - Congenital Diaphragmatic Hernia (CDH)
Nolan went home with no equipment and thrived. He continued to have digestion issues, reflux, but no one would know he has gone through so much. He is truly a Tiny Hero.
Haydn's Story - Congenital Diaphragmatic Hernia (CDH)
They began to explain to us that Haydn had a congenital diagrammatic hernia and would need a repair. They further explained that given his age, the chances of his survival were 50%. As I attempted to understand everything that was shared with me, I had no words.
Adaleyza's Story - Congenital Diaphragmatic Hernia (CDH)
Now she is 17 months. She gets her checkups every month with her surgeon, runs around, likes to eat. I am so grateful to have her here with us. She is a blessing. She has gone thru so much but she is strong. We Love our Tiny Hero.
Briella's Story - Congenital Diaphragmatic Hernia (CDH)
Briella was an undiagnosed right sided Congenital Diaphragmatic Hernia (CDH) baby. I had her at 37 weeks and I had her in a small hospital and she was airlifted to Levine’s Children’s Hospital.
Cora's Story - Congenital Diaphragmatic Hernia (CDH)
Cora was an undiagnosed case of CDH. My pregnancy was planned and normal, nothing uneventful. My anatomy scan was completely clear, along with my quad screen.
Gabriel's Story - Congenital Diaphragmatic Hernia (CDH)
She tried to look at me with a reassuring look, but I knew something was very wrong. I said through tears in my eyes “just tell me.” She said she could not hear any breathing sounds on the left side of his body.