Grayson has definitely pushed through many obstacles thrown his way, but he comes out even stronger each time! He will turn three this year, and every time I look at him, I can’t even believe what he’s been through and how far he has come! This journey has not been easy, but it has helped to know that there is a community of families out there to which you can relate!

Amelia has not had it easy. But what I have found out through this journey is that she is not alone in her struggles. She is here with us. I can hold her, kiss her, rock her to sleep, and love her unconditionally every day. Being her mom is an honor, and I don’t take it lightly!

You would not know by looking at her what all she has been through. Sydney is the light of my life and I know one day she will share her story with others and provide so much hope for what is to come!

Jerry is a true miracle! He is very active and goofy. He is talking, jumping and rocking, rolling, crawling, pulling himself up, sitting up, and trying to stand up - all the normal baby things. We are about to celebrate his one-year birthday!

For all of the CDH parents out there currently in the thick of it like us, know that these babies are stronger than you can imagine. They fight like hell and are so resilient. Also, remember to give yourself grace and know that a whole community is available to help get you through what is most likely one of the hardest things you will ever experience.

Lillyth Fyre is a miracle. Every CDH kid is, in my opinion, no matter what their outcome is. We've learned to pour all of our love onto this child because we understand that tomorrow isn't promised. It's been a terrifying journey with moments of pure love and joy.

On January 20, 2022, after 113 long days in the NICU, he was discharged home to us on a CPAP of 9 and 5 liters of oxygen. Robert very much loves life. He is a pretty happy-go-lucky guy and blows mommy and daddy away every day with how hard he fights. 

Eli is now 5 months old and is truly thriving. We know his journey was unique and that not all CDH babies come home without breathing or eating support. For that, we are eternally humbled and grateful. We went through some very dark times before he was born and throughout the early days of his life. I'm here to tell you to have faith—there absolutely is hope for these CDH warriors.

CDH is just a part of who my Landon is now, but because of what he has gone through, he can do anything. Landon is a survivor. He is a CDH survivor. He is an ECMO survivor.

The time in the hospital felt forever but doing the research and talking to other people who had gone through CDH, and reading the stories on the Tiny Hero page helped me a lot. My baby girl is the strongest person I know!

Now she is 17 months. She gets her checkups every month with her surgeon, runs around, likes to eat. I am so grateful to have her here with us. She is a blessing. She has gone thru so much but she is strong. We Love our Tiny Hero.

He is almost a year old now only on oxygen at night and 2 of his 4 medicines are being weened down so we are almost at 2 medications a day. I can’t wait to see where my little warrior goes from here!!

Carley is now a wonderful, smart, sweet and caring 6 year old. She is in the 1st grade, she is testing as a 2nd grader, reading and spelling at a 3rd grade level. She plays Softball, does gymnastics, and is a Cheerleader.

I have a 22 year old son who thrived against all odds. He got his private pilots license when he was 17 he was accepted into Rice University with a double major Cognitive Science, Classical Studies in Greek and Latin and a Neuroscience minor.