CDH Stories
Ellie’s CDH Story
Ellie loves spending time outside, swinging, reading, kicking everything in sight, and singing in the car. We wanted to write this story to give other families hope, especially those facing multiple diagnoses. CHD and genetic conditions on top of CDH can be complicated, but these babies are so strong. We are here to support everyone facing this scary diagnosis!
William’s CDH Story
William is so much more active and hungry, and his communication skills have skyrocketed! He is a super active toddler who just turned three years old. He is happy and curious and wild! I cannot wait to see where he goes from here!
Oliver’s CDH Story
I am hopeful that our complicated and rare journey can help someone someday. Oliver is one in a million and truly a miracle! We feel blessed to have our baby alive and thriving. I am so thankful for the many people and doctors/nurses who have helped us along this crazy and stressful journey.
Grace’s Story - Congenital Diaphragmatic Hernia (CDH)
It was not an easy journey for our Amazing Gracie or our family, and it can still be challenging today. But we wouldn't trade our girl - exactly the way she is - for anything. Every day we're grateful for the gift of Grace.