CDH Stories
Morgan’s CDH Story
Since I have small lungs, I found hobbies I can do without too much strain. I enjoy puzzles, music, and almost anything crafty. I make my own holiday cards for my friends and family. Even though my lungs are scarred, I love to sing.
Kai’s Story - Congenital Diaphragmatic Hernia
Kai is officially nine months and she is crawling, rolling over, and standing. She loves to dance and cuddle and play with her big sister. She always has a smile on her face as she continues to show the world how remarkably strong she is. She’s our Tiny Hero!
Elizabeth’s Story - Congenital Diaphragmatic Hernia (CDH)
Being able to hug her, see her smile, hear her babble is the best gift God could have given us. She's such a strong and intelligent baby. I can't wait to see what she does in life. I'm so happy Elizabeth chose us to be her parents.
Bella’s Story - Congenital Diaphragmatic Hernia (CDH)
Today we can't imagine life without our Bella. She injects so much love and energy, and shenanigans into our lives. Since we've been quarantined, she's really taken advantage of the extra time we have for her. This time has been so crucial for her development.
Quinn’s Story - Congenital Diaphragmatic Hernia (CDH)
Keep your head up. Take this on as something that is making you and your baby stronger in the end. Right now, your babies are caterpillars, but they will get their wings and become butterflies. When Quinn has her butterfly moment, and we go home, it’s going to be amazing! I’m looking forward to that.
Tony's Story - Congenital Diaphragmatic Hernia (CDH) and Craniosynostosis
We have never heard of Congenital Diaphragmatic Hernia before and we were told NOT to Google it. Of course my husband and I did. And in that moment our lives changed forever.
Haydn's Story - Congenital Diaphragmatic Hernia (CDH)
They began to explain to us that Haydn had a congenital diagrammatic hernia and would need a repair. They further explained that given his age, the chances of his survival were 50%. As I attempted to understand everything that was shared with me, I had no words.
Lucy's Story - Congenital Diaphragmatic Hernia (CDH)
Lucy Sofia may have had to wait 31 days after birth to be embraced by family and friends, but the truth is, she has captured the hearts of many from day 1. She is a testament to how even the frailest can empower; the tiny can have a huge impact.