CDH Stories

Liver Down - Left Sided Linda George Liver Down - Left Sided Linda George

Chrissie’s Story - Congenital Diaphragmatic Hernia (CDH)

On June 29, 2020, we were filled with excitement as we headed to the anatomy scan to find out if we were having a boy or a girl. While the scan was going on, we were so happy to see our baby, but suddenly our radiologist said she needed to call the doctor. It was then that we learned our baby girl would be born with Congenital Diaphragmatic Hernia.

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Rylee W's CDH Story

Now Rylee is six years old and loving life. She's still feisty, still fighting but doing great. Both lungs have grown, but she is on oxygen 24/7, has severe pulmonary hypertension, and is G-tube fed. None of that stops her from playing sports, running around with other kids, or singing and dancing to her favorite band, AJR! She loves playing baseball and even played in the Miracle League!

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