CDH Stories
Chrissie’s Story - Congenital Diaphragmatic Hernia (CDH)
On June 29, 2020, we were filled with excitement as we headed to the anatomy scan to find out if we were having a boy or a girl. While the scan was going on, we were so happy to see our baby, but suddenly our radiologist said she needed to call the doctor. It was then that we learned our baby girl would be born with Congenital Diaphragmatic Hernia.
Brynlee’s Story - Congenital Diaphragmatic Hernia (CDH)
I'm forever grateful to her surgical team and the NICU staff, as well as our community, who rallied around us with donations, support, and prayers. Today, Brynlee is off all of her medication, developmentally on track, and the joy of my heart.
Sawyer’s Story - Congenital Diaphragmatic Hernia (CDH)
Sawyer went home on day 26 with reflux medication (omeprazole) and has had no issues since. He is now 1, weighs 27 pounds, and is 78 inches long. He's had no feeding or weight gain issues and has eaten over 100 different foods!
Rylee W's CDH Story
Now Rylee is six years old and loving life. She's still feisty, still fighting but doing great. Both lungs have grown, but she is on oxygen 24/7, has severe pulmonary hypertension, and is G-tube fed. None of that stops her from playing sports, running around with other kids, or singing and dancing to her favorite band, AJR! She loves playing baseball and even played in the Miracle League!