CDH Stories

Liver Down - Left Sided Elizabeth Cummins Liver Down - Left Sided Elizabeth Cummins

Zyaire’s CDH Story

Today, Zy is a happy, mostly healthy baby. He loves to play with his siblings, clap his hands, and climb on everything. He has mastered eating by mouth, crawling, pulling himself up to stand, and walking while holding onto something. For everything he has been through, he is the happiest baby we know, and we couldn’t be more blessed and in love!

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Liver Up - Right Sided Elizabeth Cummins Liver Up - Right Sided Elizabeth Cummins

Hazel’s CDH Story

Hazel was discharged without any medications, respiratory support, or other kinds of wires, just fortified breastmilk. She gained weight quickly and came off the fortified breastmilk at four months old. Hazel turned one this month and she is a very happy, healthy, and active baby.

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Liver Down - Right Sided Elizabeth Cummins Liver Down - Right Sided Elizabeth Cummins

Amelia’s CDH Story

Amelia is almost four months old and absolutely thriving and doing ALL the growing baby things. I look at her with such admiration because all I see is strength in such a little body. Her big brother is her best friend, her dog is her biggest protector, and her parents are grateful each and every day for our wonderful, resilient - Tiny Hero.

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Liver Up - Right Sided Elizabeth Cummins Liver Up - Right Sided Elizabeth Cummins

Maximilian’s CDH Story

For the families who get this diagnosis, with the right team, strength, support, love, and belief in a positive outcome, you will emerge in a world that seems unimaginable at first. The outcome is so different from the beginning. It's a slow, brutal path in the starting weeks and months, but seeing this blessing in action now makes those days feel like a distant memory.

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Liver Down - Left Sided Elizabeth Cummins Liver Down - Left Sided Elizabeth Cummins

Weston’s CDH Story

When I tell people about his story, they are shocked that this is the same baby. He is a thriving, happy, and healthy little guy. Weston is a speedy crawler and pulls himself to stand. He just started cruising along tables and couches. Some of his favorite things include watching Miss Rachel on TV, chasing after our dog, playing with cars, eating French fries, and laughing at his big brother!

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Liver Up - Right Sided Linda George Liver Up - Right Sided Linda George

Charlotte’s Story - Congenital Diaphragmatic Hernia

If I could talk to myself or someone else in my position during those dark few days shortly after diagnosis, I would tell her that there can be a happy story. You can find strength you did not know you possessed, and you can find support to get through the long days. Charlotte is still full of fire. I can't wait until she is older and I can share with her just how amazing she really is!

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