CDH Stories
Kash’s CDH Story
Kash acts like a baby who was never hospitalized for 2.5 months and was never on ECMO/intubated. We have a wonderful team and physician to thank as well as an amazing God who guided us throughout our entire journey. Kash has the devoted backing of family and friends “Kash’s Krew” who gave us unconditional love and support while being so far away from home!
Ella’s CDH Story
Our family is so grateful for the Tiny Hero organization. We never would have learned that we could save our daughter if it weren't for the Facebook group with so many people recommending specialty hospitals. Our daughter would not have made it if we had stayed in the state for her care!
Masina’s CDH Story
I dove into hours of research on CDH and joined every support group, forum, and community I could find. The CDH support network from Tiny Hero became our beacon of hope, providing us with the knowledge we desperately needed!
Luke’s CDH Story
I'm so thankful for the care we received at John Hopkins. The entire CDH team on that floor is incredible and I will never forget them. I am also so thankful for the Tiny Hero community and the hope I received when I had none!
Elisha’s Story - Congenital Diaphragmatic Hernia (CDH)
This was a long hard battle. I would do it a hundred times over for the life of my baby. Elisha is a fighter, and I'm proud to say that. I think this helped him through it all. Today, he will be 15 in September.