CDH Stories

Liver Up - Right Sided Elizabeth Cummins Liver Up - Right Sided Elizabeth Cummins

Kash’s CDH Story

Kash acts like a baby who was never hospitalized for 2.5 months and was never on ECMO/intubated. We have a wonderful team and physician to thank as well as an amazing God who guided us throughout our entire journey. Kash has the devoted backing of family and friends “Kash’s Krew” who gave us unconditional love and support while being so far away from home!

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Liver Up - Left Sided Elizabeth Cummins Liver Up - Left Sided Elizabeth Cummins

Herle’s CDH Story

I found Tiny Hero’s community on Facebook. I wrote my story and asked for stories of hope in return, and the members did not disappoint. I got overwhelmed by the response and copied all the stories and images into a document that I printed and carried with me everywhere. I read it so many times the pages got worn thin. It was a physical hope to hold on to.

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Liver Up - Left Sided Elizabeth Cummins Liver Up - Left Sided Elizabeth Cummins

Ty’s CDH Story

I've followed Tiny Hero since before Ty was born, read all the stories, and found HOPE that I would someday get to share our sweet Ty's story. It's scary, it's intimidating, devastating, and nothing about your child having to go through this is fair, BUT it is NOT a death sentence. These babies are fighters; they have no choice but to be, and their parents and siblings are too!

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Liver Up - Left Sided Elizabeth Cummins Liver Up - Left Sided Elizabeth Cummins

Baylee’s CDH Story

Baylee has been living it up at home with her brother, getting stronger by the day and thriving every day. She is still very small, but that doesn’t stop her from doing anything. Baylee is now a year old and is the sweetest, most independent baby ever. This journey was not easy at all, but these babies are so strong and worth every bit of it!

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Liver Up - Right Sided Elizabeth Cummins Liver Up - Right Sided Elizabeth Cummins

Luca’s CDH Story

Luca is a very happy boy who loves to laugh, smile, make noises, and babble/screech, especially at his brother and fur siblings. He loves to wave at everyone all day long, including himself. CDH can't stop Luca from always smiling and bringing smiles to everyone he meets!

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Liver Up - Left Sided Elizabeth Cummins Liver Up - Left Sided Elizabeth Cummins

Rhiley’s Story - Congenital Diaphragmatic Hernia

For all of the CDH parents out there currently in the thick of it like us, know that these babies are stronger than you can imagine. They fight like hell and are so resilient. Also, remember to give yourself grace and know that a whole community is available to help get you through what is most likely one of the hardest things you will ever experience.

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Liver Up - Left Sided Elizabeth Cummins Liver Up - Left Sided Elizabeth Cummins

Avery’s Story - Congenital Diaphragmatic Hernia

Avery ended up being in the hospital for two and a half months and coming home with a G-tube and no oxygen needed. Now at almost a year old, she's G-tube free and hitting all her milestones. Her heart has developed well, and her echos have been good. It's amazing how strong these babies really are. Even though it's hard, it really is true when people say not to lose hope.

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Aria’s Story - Congenital Diaphragmatic Hernia (CDH)

Today, Aria is the most independent, beautiful, and determined baby I know. To all the CDH families that are reading this, Keep the Faith! During our journey, someone told me that CDH is not a race, it's a marathon. My mom gave Aria the nickname "Turtle" for that very reason. Slow and steady!

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