CDH Stories

Liver Down - Left Sided Elizabeth Cummins Liver Down - Left Sided Elizabeth Cummins

Zyaire’s CDH Story

Today, Zy is a happy, mostly healthy baby. He loves to play with his siblings, clap his hands, and climb on everything. He has mastered eating by mouth, crawling, pulling himself up to stand, and walking while holding onto something. For everything he has been through, he is the happiest baby we know, and we couldn’t be more blessed and in love!

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Liver Down - Left Sided Elizabeth Cummins Liver Down - Left Sided Elizabeth Cummins

Abel’s CDH Story

Once I knew this was going to be my life as a CDH mom and that there would always be medical ups and downs, I realized it's all about how you handle each bump in the road. Being a mom of a child with special medical needs made me so much more grateful for all the little things and milestones of Abel’s life!

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Liver Up - Right Sided Elizabeth Cummins Liver Up - Right Sided Elizabeth Cummins

Maximilian’s CDH Story

For the families who get this diagnosis, with the right team, strength, support, love, and belief in a positive outcome, you will emerge in a world that seems unimaginable at first. The outcome is so different from the beginning. It's a slow, brutal path in the starting weeks and months, but seeing this blessing in action now makes those days feel like a distant memory.

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Liver Up - Left Sided Elizabeth Cummins Liver Up - Left Sided Elizabeth Cummins

Charlotte’s Story - Congenital Diaphragmatic Hernia

Charlotte came home on December 29th with an NG tube and no medications except Pepcid and vitamin D. Within a week of being home, the pediatrician allowed us to take out the NG tube since Charlotte was taking a bottle and breastfeeding just fine. Our sweet girl is absolutely a Tiny Hero, and I hope that she continues to beat everything thrown at her!

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Liver Up - Left Sided Elizabeth Cummins Liver Up - Left Sided Elizabeth Cummins

Avery’s Story - Congenital Diaphragmatic Hernia

Avery ended up being in the hospital for two and a half months and coming home with a G-tube and no oxygen needed. Now at almost a year old, she's G-tube free and hitting all her milestones. Her heart has developed well, and her echos have been good. It's amazing how strong these babies really are. Even though it's hard, it really is true when people say not to lose hope.

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Liver Up - Left Sided Linda George Liver Up - Left Sided Linda George

Ella’s Story - Congenital Diaphragmatic Hernia (CDH)

I fought hard for my little girl all these months and will continue to. I questioned them, brainstormed and spoke up when I needed to. I wasn’t afraid to pull everyone in and advocate for family meetings when I got frustrated. My sweet Ella turned one this month and I am forever grateful to be her momma. She is truly a blessing and I am happy to have her here with us all today!

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