CDH Stories

Liver Up - Right Sided Elizabeth Cummins Liver Up - Right Sided Elizabeth Cummins

Ellie’s CDH Story

Going into my 20-week scan, I was completely unaware of what to expect. I even had additional follow-up scans because they couldn’t locate the liver. All the doctors cleared me and said everything looked good, but now I realize I was naïve and should have asked more questions. In hindsight, I would advise others to be curious—no question should feel too out of the ordinary.

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Liver Down - Left Sided Linda George Liver Down - Left Sided Linda George

Kai Michael’s Story - Congenital Diaphragmatic Hernia

To think back to November 2022, when the doctors told us to terminate, to now a happy, healthy, thriving little boy is such a miracle. For all of those parents having to endure the same battle we did with CDH, don't lose hope. We have learned that CDH has a wide variety of outcomes. The numbers listed are just that, numbers. These warriors we are blessed with are that and so much more!

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