CDH Stories
Ellie’s CDH Story
Going into my 20-week scan, I was completely unaware of what to expect. I even had additional follow-up scans because they couldn’t locate the liver. All the doctors cleared me and said everything looked good, but now I realize I was naïve and should have asked more questions. In hindsight, I would advise others to be curious—no question should feel too out of the ordinary.
Kai Michael’s Story - Congenital Diaphragmatic Hernia
To think back to November 2022, when the doctors told us to terminate, to now a happy, healthy, thriving little boy is such a miracle. For all of those parents having to endure the same battle we did with CDH, don't lose hope. We have learned that CDH has a wide variety of outcomes. The numbers listed are just that, numbers. These warriors we are blessed with are that and so much more!
Hudson’s Story - Congenital Diaphragmatic Hernia (CDH)
If you didn't look at my X-rays or the scar on my belly, you would never know there was anything wrong with me. I did so unexpectedly wonderful that the hospital kicked me out just before I turned 3 weeks old. The doctors have no explanation as to why I did so well. Now, do you believe in miracles? I'm living proof of one!