My son was born with Congenital Diaphragmatic Hernia on the Right side. We had no idea of his condition until he was born.

Carley is now a wonderful, smart, sweet and caring 6 year old. She is in the 1st grade, she is testing as a 2nd grader, reading and spelling at a 3rd grade level. She plays Softball, does gymnastics, and is a Cheerleader.

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU two hours away, so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO.

We get to the office and I was in shock. How could my baby be diagnosed with something so rare and so life threatening? Why was this happening to the baby we wanted for so long? No one could answer my questions at the time.