2020 has been a year like no other. Having a CDH baby in the middle of a global pandemic sounds like a riveting fiction novel. God works in mysterious ways, and this journey of a lifetime has challenged our whole family to reimagine what’s possible in life.

We left the hospital at 41 days. She came home on .1 liter of oxygen and was off it in 3 months. Now, she is seven months and a thriving little girl.

Nolan went home with no equipment and thrived. He continued to have digestion issues, reflux, but no one would know he has gone through so much. He is truly a Tiny Hero.

Today, Arabella is absolutely amazing. Of course, she may have minor issues in the future, but if this terrible defect was a magazine, Bella would be on the cover. To think we were so close to losing her. So close to not giving her a shot to survive.

There were many hard days, but Elisa's life was and still is 100% worth the fight. Our pregnancy and first year with Elisa have been anything but ordinary, but we wouldn't have it any other way.

The time in the hospital felt forever but doing the research and talking to other people who had gone through CDH, and reading the stories on the Tiny Hero page helped me a lot. My baby girl is the strongest person I know!

CDH is not a death sentence. There is so much hope for these kids. You just need to believe in them and find a medical team that believes in them as well!

If you didn't look at my X-rays or the scar on my belly, you would never know there was anything wrong with me. I did so unexpectedly wonderful that the hospital kicked me out just before I turned 3 weeks old. The doctors have no explanation as to why I did so well. Now, do you believe in miracles? I'm living proof of one!

After losing one son to CDH, we were willing to do whatever we had to do to be sure Soren survived. Without hesitation, we booked our plane tickets and made our way to Florida to meet the infamous Dr. Kays.

After we were diagnosed, I spoke to a mom who told me that if God had told her the outcome, it wouldn't have allowed her to entirely rely on Him for the months of the unknown. God led us to JHAC and gave us the strength we needed each day to make it.

Elijah is growing stronger everyday and beating all the odds that were stacked against him. None of this would be possible without the amazing team at Cincinnati Children’s hospital and the Tiny Hero Foundation and their donors.

Jaxon recently turned one and is the happiest boy we have ever seen. He brings so much joy into our lives every single day. He's had some minor bumps in the road along the way, but each time he has bounced back stronger than before. He continues to amaze us every day with how far he has come, given where he started.

We were so happy. It was exactly what we had both hoped for. And then, after a few brief moments of joy, we were immediately crushed again. Like before, our tech left the room and came back with the OBGYN. The doctor told us that our girl’s stomach was next to her heart. She explained that this happened because of a hole or defect in the diaphragm.

We have never heard of Congenital Diaphragmatic Hernia before and we were told NOT to Google it. Of course my husband and I did. And in that moment our lives changed forever.

After being born with LCDH and having his intestines, bowel, and spleen up. After 2 ECMO runs, repair surgery, nissen and a g-tube done Carmello is now a 10 year old, 4th grader, and a straight A student.

And when I was between 32-33 weeks pregnant with him, we found out that he had CDH, which is short for Congenital Diaphragmatic Hernia. We learned this occurs when his diaphragm was not formed fully and that he had his intestines in his chest.

My son was born with Congenital Diaphragmatic Hernia on the Right side. We had no idea of his condition until he was born.

Ryan’s CDH journey began on December 20,2017, after we were referred to OSU Wexner MFM clinic due to an abnormal finding at our 20-week scan at the OB/GYN.

They began to explain to us that Haydn had a congenital diagrammatic hernia and would need a repair. They further explained that given his age, the chances of his survival were 50%. As I attempted to understand everything that was shared with me, I had no words.

Later a Facebook friend of a friend told us her story of her CDH baby and how they found hope through Tiny Hero and a CDH specialist, Dr. Kays, at Johns Hopkins All Children’s Hospital