CDH Stories
Brody’s Story - Congenital Diaphragmatic Hernia (CDH)
He has an extreme love of all sports but especially baseball and golf. I've been told his hand-eye coordination in these sports is as good, if not better than a 5-year-old at only two years old! He continues to amaze us with his sweet personality and talents.
Aero’s Story - Congenital Diaphragmatic Hernia (CDH)
After 57 days in the NICU, we were able to come home a couple of weeks before Christmas. October 11th will forever be a day to remember!
Rayline’s Story - Congenital Diaphragmatic Hernia (CDH)
She might be small, but she has a strong soul. She fought for her breath and her life from the minute she was born and refused to give up. I'm so proud of her and thankful for being her mom. She is a Tiny Hero, and I'm proud to say that I'm the mother of Tiny Hero.
Bella’s Story - Congenital Diaphragmatic Hernia (CDH)
Today we can't imagine life without our Bella. She injects so much love and energy, and shenanigans into our lives. Since we've been quarantined, she's really taken advantage of the extra time we have for her. This time has been so crucial for her development.
Jorja’s Story - Congenital Diaphragmatic Hernia (CDH)
She has defied all the odds. Home is where she belongs with her big brother, Leo. We are forever proud and grateful for her. There were many times we thought it was the end. We can't say thank you enough to all the healthcare workers for saving our warrior princess.
Declan’s Story - Congenital Diaphragmatic Hernia (CDH)
Declan is now 16 months and just thriving, and at every appointment, he amazes his pediatrician. We are very proud and thank God every day for our Tiny Hero!
Sawyer’s Story - Congenital Diaphragmatic Hernia (CDH)
Sawyer went home on day 26 with reflux medication (omeprazole) and has had no issues since. He is now 1, weighs 27 pounds, and is 78 inches long. He's had no feeding or weight gain issues and has eaten over 100 different foods!
June Bee’s Story - Congenital Diaphragmatic Hernia (CDH)
Today, she thrives and still beats all odds. My baby is 2 now, but she's still our Tiny Hero.
Aubrey’s Story - Congenital Diaphragmatic Hernia (CDH)
Fast forward two months, and Aubrey is a happy and healthy six-month-old. She is eating pureed fruits and vegetables along with breast milk, working on rolling over, and having the time of her life in her new bouncer.
Emery Aaliyah's Story - Congenital Diaphragmatic Hernia (CDH)
She’s our strong baby girl, and we are so proud of our little warrior. We are still shocked and amazed by everything she went through. We look at her everyday thinking back on how far she’s come. We are truly blessed to have our daughter.
Oliver’s Story - Congenital Diaphragmatic Hernia (CDH)
Oliver is the happiest and bravest little boy I know, and he's never let any of this stop him! He's in school and has lots of friends. He is so funny, loves life, and is obsessed with trains. He is truly my Tiny Hero! And an absolute inspiration to everyone who knows him.
Kian’s Story - Congenital Diaphragmatic Hernia (CDH)
He kept on surprising us all, ever since the day he was born. He is such a happy baby. He smiles all the time, and he always has this charming look in his eyes.
Paisley’s Story - Congenital Diaphragmatic Hernia (CDH)
God has been so good to us throughout this journey, and we could not ask for a better turn out for our baby girl!
Quinn’s Story - Congenital Diaphragmatic Hernia (CDH)
Keep your head up. Take this on as something that is making you and your baby stronger in the end. Right now, your babies are caterpillars, but they will get their wings and become butterflies. When Quinn has her butterfly moment, and we go home, it’s going to be amazing! I’m looking forward to that.
Alexa’s Story - Congenital Diaphragmatic Hernia (CDH)
Alexa is a “spicy,” sweet, fun, determined, and loving little girl. It is so fun to see this personality blossom, knowing that it had a big part of her drive/success in her NICU days. She currently goes to preschool and loves it!
Carsten’s Story - Congenital Diaphragmatic Hernia (CDH)
Although we will never know exactly why Carsten was born with CDH, we do know that he has shown us a kind of strength we did not know existed and the sheer determination to fight no matter what.
Kaidence’s Story - Congenital Diaphragmatic Hernia (CDH)
With every beautiful breath she takes and every high-pitch squeal we hear, we are reminded of God’s grace and the amazing work He is doing through Dr. Kays and the JHACH team.
Deepti’s Story - Congenital Diaphragmatic Hernia (CDH)
Deepti is about to turn 3. She has overcome all her milestones and is now a G-tube graduate! Her latest X-rays revealed that the Gore-Tex patch is stable and shows no signs of reherniation. We are so proud of how she is overachieving in her motor skills and communicates like an adult. She is about to start school and is the happiest little toddler who loves chicken fries, Blippi, and the outdoors.
Easton’s Story - Congenital Diaphragmatic Hernia (CDH)
Today, he is a happy, healthy 6-month old that loves to eat & loves to play. If you didn't know him, you would think he never went through any of it.
Elijah’s Story - Congenital Diaphragmatic Hernia (CDH)
Looking forward to the future, Elijah has a long road ahead of him for healing and growing. He's already made it through his diaphragm repair stage, so his next step is just to see how he does as he heals.