On January 20, 2022, after 113 long days in the NICU, he was discharged home to us on a CPAP of 9 and 5 liters of oxygen. Robert very much loves life. He is a pretty happy-go-lucky guy and blows mommy and daddy away every day with how hard he fights. 

Eli is now 5 months old and is truly thriving. We know his journey was unique and that not all CDH babies come home without breathing or eating support. For that, we are eternally humbled and grateful. We went through some very dark times before he was born and throughout the early days of his life. I'm here to tell you to have faith—there absolutely is hope for these CDH warriors.

These babies are so strong and they will show you just how strong they are. They’re a miracle. Please, don’t lose hope. This is treatable. Do your research and follow your heart. It’s not a race, it’s minute by minute. Every little accomplishment matters, so celebrate them. Don’t give up hope!

As Roman approaches his first birthday, we couldn’t be any more proud of him. He is the happiest, most determined, and cheeky little boy. He’s hitting his milestones and we are so grateful for him every day.

Being in the NICU stirred up all kinds of emotions. It was hard healing from childbirth while sleeping in chairs, but I did it all for my baby! I knew she needed me by her side. I had many rough days, but we fought together. She was such a strong fighter, my Tiny Hero!

I fought hard for my little girl all these months and will continue to. I questioned them, brainstormed and spoke up when I needed to. I wasn’t afraid to pull everyone in and advocate for family meetings when I got frustrated. My sweet Ella turned one this month and I am forever grateful to be her momma. She is truly a blessing and I am happy to have her here with us all today!

Bryson is a vibrant, active, happy little boy who loves life and having fun! His surgery was performed laparoscopically, leaving not even a trace of a belly scar and his only scar is on the back where they stitched the hold from the breathing tube. His team has no reservations about his growth and development.

On June 29, 2020, we were filled with excitement as we headed to the anatomy scan to find out if we were having a boy or a girl. While the scan was going on, we were so happy to see our baby, but suddenly our radiologist said she needed to call the doctor. It was then that we learned our baby girl would be born with Congenital Diaphragmatic Hernia.

We are so proud of Sinead, she never let CDH get to her, and she continues to amaze us every day. To all parents that have CDH kids - it can sometimes be a long battle, but well worth it!

We still can't believe Hayden is doing as well as he is today. He has oxygen support at ¼ liter and does have a G-tube, but it seems pretty minor compared to what they were expecting for our little guy. He is both a miracle and a blessing, and we thank God every day that he proved everyone wrong.

Being a parent to a CDH baby is a whole load of anxiety, but they are the strongest babies in the world! Believe in yourself and believe in your baby. They are miracles!

Seeing what she's been through with CDH and how far she's come never gets old! She will be one in just a few days, and we are so thankful for her amazing surgeon and everyone involved in her care.

Kyson is thriving at home. We are so blessed and thankful for our little miracle. CDH is a scary diagnosis but these little warriors are such strong fighters! Have faith in your Tiny Hero - they can accomplish anything!

Our family is so blessed to have only spent 33 days in the NICU with Lilith. Everyone was amazed with how well she was doing, and at 12 days old, I finally was able to hold her.

Callie is doing really well, and her personality is emerging now that she is home. She still sees a lot of specialists very regularly, and we still have a lot of obstacles ahead of us, but we will continue to fight!

Sophia has been thriving at home ever since. She’s developing normally and growing like a weed. No one who meets her would ever know how rocky her start was!

This journey hasn't been easy, but you never know about things like this until it happens to you—all of the sleepless nights at the hospital, surgeries, all the waiting, the nerves. The list could go on and on. Every CDH journey is different but we are so alike in many ways.

Isabella is our little rockstar. She brings so much joy to those around her. We are praying for your Tiny Hero, too, and believing in your miracle; they really do happen!

We are amazed by our little superstar and could not believe how fast she became well enough to go home. She's now 8 weeks old, feeding and growing well.

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU two hours away, so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO.