I'm so thankful for the care we received at John Hopkins. The entire CDH team on that floor is incredible and I will never forget them. I am also so thankful for the Tiny Hero community and the hope I received when I had none!

She's now a feisty two-year-old who keeps us on our toes. She loves to do anything in the water, including swimming, going to the lake and feeding the ducks, or, when we're lucky enough, going to the beach. We cherish every moment we get with Presley because it's one more moment we weren't guaranteed, and that makes every moment that much more special!

After 68 days in the NICU, our sweet miracle came home! Charlotte is now ten months old, developmentally right on track, and eating completely orally. She is still small, but that doesn’t stop her from doing anything! This journey is so hard, but these babies are strong and worth the fight!

I share these details to say that even under the direst circumstances, there is HOPE! Yes, there is pain, grief, and fear of loss, but there is always HOPE!

Ollie is almost two years old and the happiest, most loving, playful little boy. If you are a parent just finding out or in the thick of it, know that these Tiny Heroes are stronger than you think and will be ready to fight!

Charlotte came home on December 29th with an NG tube and no medications except Pepcid and vitamin D. Within a week of being home, the pediatrician allowed us to take out the NG tube since Charlotte was taking a bottle and breastfeeding just fine. Our sweet girl is absolutely a Tiny Hero, and I hope that she continues to beat everything thrown at her!

For all of the CDH parents out there currently in the thick of it like us, know that these babies are stronger than you can imagine. They fight like hell and are so resilient. Also, remember to give yourself grace and know that a whole community is available to help get you through what is most likely one of the hardest things you will ever experience.

Our sweet miracle has overcome so much in such a short amount of time, and my husband and I are so proud of her. Being a CDH mom on top of being a first-time mom has been a rollercoaster, but this sweet face makes it all worth it.

Avery ended up being in the hospital for two and a half months and coming home with a G-tube and no oxygen needed. Now at almost a year old, she's G-tube free and hitting all her milestones. Her heart has developed well, and her echos have been good. It's amazing how strong these babies really are. Even though it's hard, it really is true when people say not to lose hope.

If I could talk to myself or someone else in my position during those dark few days shortly after diagnosis, I would tell her that there can be a happy story. You can find strength you did not know you possessed, and you can find support to get through the long days. Charlotte is still full of fire. I can't wait until she is older and I can share with her just how amazing she really is!

The surgeon was shocked, as were we. First, to see identical twins both with CDH and then the same exact defect. What do you say to the man who saved your children's lives? I just thanked him over and over. A huge weight had been lifted off my shoulders. What a rollercoaster ride!

Kai is officially nine months and she is crawling, rolling over, and standing. She loves to dance and cuddle and play with her big sister. She always has a smile on her face as she continues to show the world how remarkably strong she is. She’s our Tiny Hero!

To think back to November 2022, when the doctors told us to terminate, to now a happy, healthy, thriving little boy is such a miracle. For all of those parents having to endure the same battle we did with CDH, don't lose hope. We have learned that CDH has a wide variety of outcomes. The numbers listed are just that, numbers. These warriors we are blessed with are that and so much more!

Once a Tiny Hero, ALWAYS a Tiny Hero! These miracle children will never be forgotten.

My name is Samantha, and my fiancé's name is Mark, and we're the parents of our wonderful daughter, Rylee. Now that we’re home, she gets OT and early development therapy. She also sees a neurologist, cardiologist, and GI doctor. She is a Tiny Hero!

Remington just turned one! There have been many ups and downs in the last year, with constant doctor appointments, meeting new doctors, and two more surgeries since his diaphragmatic hernia surgery. Despite all he has been through this last year, he is among the happiest babies I know.

Asaiah was born at 32 months and 2 weeks and has been fighting ever since. He is now 2 months old now and currently taking 80 ML. He is stable on CPAP and we might consider rehab for him in the near future. He is our Tiny Hero.

Ronnie spent 5 weeks in the NICU and made it home the night before Christmas. It was a miracle! We have had ER visits, urgent care, and hospital stays even after discharge. He is a Tiny Hero!

Trey is absolutely thriving! He was able to wean from the oxygen completely in January after 4 months of being home. He is still 100% G-tube fed but is beginning to show more and more interest in purees and food. Trey truly had a story to tell, and it was our job to help him tell it. This is only the beginning.

Charlotte is so happy and hitting all her milestones. We can't believe she will be 1 in June! We love our little wild child and are forever thankful to Tiny Hero for their support during the hardest time of our life.