I was so worried that I was ruining my kids’ lives by moving them so far from everything they knew, and it turns out I had nothing to worry about. My children were positively spoiled by the love and attention from everyone out there, they made lifelong friends, and got amazing experiences they would not have been able to experience otherwise.

Once you are given a CDH diagnosis, several things generally come to mind, one of which may be, “How Will I afford a CDH baby?” The idea of medical bills, time off work, and expenses related to relocating may make everything seem impossible. However, there are several things you can do to begin saving and help offset the cost.

Like the rest of you, I have struggled with the events of the past two weeks, and am still trying to wrap my brain around our state as a world. Interestingly, on several occasions, my mind has been drawn to memories of our first days after diagnosis. I know you will relate as I set the scene.

I would never wish a CDH journey on anyone, but I'm so grateful for who our family has become because of it.