Oliver is the happiest and bravest little boy I know, and he's never let any of this stop him! He's in school and has lots of friends. He is so funny, loves life, and is obsessed with trains. He is truly my Tiny Hero! And an absolute inspiration to everyone who knows him.

He kept on surprising us all, ever since the day he was born. He is such a happy baby. He smiles all the time, and he always has this charming look in his eyes.

God has been so good to us throughout this journey, and we could not ask for a better turn out for our baby girl!

Keep your head up. Take this on as something that is making you and your baby stronger in the end. Right now, your babies are caterpillars, but they will get their wings and become butterflies. When Quinn has her butterfly moment, and we go home, it’s going to be amazing! I’m looking forward to that.

Alexa is a “spicy,” sweet, fun, determined, and loving little girl. It is so fun to see this personality blossom, knowing that it had a big part of her drive/success in her NICU days. She currently goes to preschool and loves it!

Although we will never know exactly why Carsten was born with CDH, we do know that he has shown us a kind of strength we did not know existed and the sheer determination to fight no matter what.

With every beautiful breath she takes and every high-pitch squeal we hear, we are reminded of God’s grace and the amazing work He is doing through Dr. Kays and the JHACH team.

Deepti is about to turn 3. She has overcome all her milestones and is now a G-tube graduate! Her latest X-rays revealed that the Gore-Tex patch is stable and shows no signs of reherniation. We are so proud of how she is overachieving in her motor skills and communicates like an adult. She is about to start school and is the happiest little toddler who loves chicken fries, Blippi, and the outdoors.

Today, he is a happy, healthy 6-month old that loves to eat & loves to play. If you didn't know him, you would think he never went through any of it.

Looking forward to the future, Elijah has a long road ahead of him for healing and growing. He's already made it through his diaphragm repair stage, so his next step is just to see how he does as he heals.

2020 has been a year like no other. Having a CDH baby in the middle of a global pandemic sounds like a riveting fiction novel. God works in mysterious ways, and this journey of a lifetime has challenged our whole family to reimagine what’s possible in life.

We left the hospital at 41 days. She came home on .1 liter of oxygen and was off it in 3 months. Now, she is seven months and a thriving little girl.

Nolan went home with no equipment and thrived. He continued to have digestion issues, reflux, but no one would know he has gone through so much. He is truly a Tiny Hero.

Today, Arabella is absolutely amazing. Of course, she may have minor issues in the future, but if this terrible defect was a magazine, Bella would be on the cover. To think we were so close to losing her. So close to not giving her a shot to survive.

There were many hard days, but Elisa's life was and still is 100% worth the fight. Our pregnancy and first year with Elisa have been anything but ordinary, but we wouldn't have it any other way.

The time in the hospital felt forever but doing the research and talking to other people who had gone through CDH, and reading the stories on the Tiny Hero page helped me a lot. My baby girl is the strongest person I know!

CDH is not a death sentence. There is so much hope for these kids. You just need to believe in them and find a medical team that believes in them as well!

If you didn't look at my X-rays or the scar on my belly, you would never know there was anything wrong with me. I did so unexpectedly wonderful that the hospital kicked me out just before I turned 3 weeks old. The doctors have no explanation as to why I did so well. Now, do you believe in miracles? I'm living proof of one!

After losing one son to CDH, we were willing to do whatever we had to do to be sure Soren survived. Without hesitation, we booked our plane tickets and made our way to Florida to meet the infamous Dr. Kays.

After we were diagnosed, I spoke to a mom who told me that if God had told her the outcome, it wouldn't have allowed her to entirely rely on Him for the months of the unknown. God led us to JHAC and gave us the strength we needed each day to make it.