Elijah is growing stronger everyday and beating all the odds that were stacked against him. None of this would be possible without the amazing team at Cincinnati Children’s hospital and the Tiny Hero Foundation and their donors.

Jaxon recently turned one and is the happiest boy we have ever seen. He brings so much joy into our lives every single day. He's had some minor bumps in the road along the way, but each time he has bounced back stronger than before. He continues to amaze us every day with how far he has come, given where he started.

We were so happy. It was exactly what we had both hoped for. And then, after a few brief moments of joy, we were immediately crushed again. Like before, our tech left the room and came back with the OBGYN. The doctor told us that our girl’s stomach was next to her heart. She explained that this happened because of a hole or defect in the diaphragm.

We have never heard of Congenital Diaphragmatic Hernia before and we were told NOT to Google it. Of course my husband and I did. And in that moment our lives changed forever.

After being born with LCDH and having his intestines, bowel, and spleen up. After 2 ECMO runs, repair surgery, nissen and a g-tube done Carmello is now a 10 year old, 4th grader, and a straight A student.

And when I was between 32-33 weeks pregnant with him, we found out that he had CDH, which is short for Congenital Diaphragmatic Hernia. We learned this occurs when his diaphragm was not formed fully and that he had his intestines in his chest.

My son was born with Congenital Diaphragmatic Hernia on the Right side. We had no idea of his condition until he was born.

Ryan’s CDH journey began on December 20,2017, after we were referred to OSU Wexner MFM clinic due to an abnormal finding at our 20-week scan at the OB/GYN.

They began to explain to us that Haydn had a congenital diagrammatic hernia and would need a repair. They further explained that given his age, the chances of his survival were 50%. As I attempted to understand everything that was shared with me, I had no words.

Later a Facebook friend of a friend told us her story of her CDH baby and how they found hope through Tiny Hero and a CDH specialist, Dr. Kays, at Johns Hopkins All Children’s Hospital

Once we got to Gainesville the doctor there new exactly what it was. He wrote on a piece of paper, CDH. I had no idea what that even was. He told me it was a 97 percent survival rate but she would need surgery and a long hospital stay.

Our Strong for Penelope supporters and the CDH community have shown us so much love over this past year it is incredibly humbling. Without their support we would not have been able to relocate the 1,861 miles away from home with half of our family in St. Petersburg Florida and the other half in Pierre South Dakota.

When we received the news of the CDH, we were so devastated knowing the journey she would have ahead of herself, but we also were filled with so much hope because we knew that with the right team, she would do great.

Liam is such an extremely loving and happy little boy. Liam ran the CDH Marathon and has continued to overcome obstacles daily!

But in this first year of life, if there is anything Jax has proven, it’s that he is a damn survivor. He has and continues to beat the odds and he proves everyone wrong ALL THE TIME. Watching him succeed has been so humbling, so inspiring, and has encouraged me to have faith in a tiny little human.

Now Rylee is six years old and loving life. She's still feisty, still fighting but doing great. Both lungs have grown, but she is on oxygen 24/7, has severe pulmonary hypertension, and is G-tube fed. None of that stops her from playing sports, running around with other kids, or singing and dancing to her favorite band, AJR! She loves playing baseball and even played in the Miracle League!

Now she is 17 months. She gets her checkups every month with her surgeon, runs around, likes to eat. I am so grateful to have her here with us. She is a blessing. She has gone thru so much but she is strong. We Love our Tiny Hero.

He is almost a year old now only on oxygen at night and 2 of his 4 medicines are being weened down so we are almost at 2 medications a day. I can’t wait to see where my little warrior goes from here!!

Carley is now a wonderful, smart, sweet and caring 6 year old. She is in the 1st grade, she is testing as a 2nd grader, reading and spelling at a 3rd grade level. She plays Softball, does gymnastics, and is a Cheerleader.

Briella was an undiagnosed right sided Congenital Diaphragmatic Hernia (CDH) baby. I had her at 37 weeks and I had her in a small hospital and she was airlifted to Levine’s Children’s Hospital.