CDH Stories
Avery’s Story - Congenital Diaphragmatic Hernia (CDH)
We never expected her CDH journey to be that quick, but we are so lucky that it was. You would never know what that first month of her life entailed, and there will never be enough thank you’s in the world to thank Dr. Hedrick and every other doctor/nurse who took care of her. She is our strong and brave little girl, and she has been a rockstar since day one.
Cooper’s Story - Congenital Diaphragmatic Hernia (CDH)
Cooper is our miracle and our CDH warrior! He is currently 8 months old, fully weaned from the NG tube, and doing so well!
Scarlett’s Story - Congenital Diaphragmatic Hernia (CDH)
We are so incredibly proud of Scarlett and everything she has overcome. She continues to amaze us daily with her strength, we are so blessed to be her parents, and we can’t wait to see what the future holds for her!
Navy’s Story - Congenital Diaphragmatic Hernia (CDH)
Today Navy is one year old. He's SO close to walking. He eats food of all kinds. He loves dancing, swimming in the pool and going to the beach. He gets a huge smile whenever he sees Mickey Mouse or his sister. He is his mommy's sweet cuddler and daddy's wild baby.
Teagan’s Story - Congenital Diaphragmatic Hernia (CDH)
Teagan continues to amaze us with her strength and resilience. She is the sweetest girl. She loves her brother and her dog. She has the biggest smile and a light that shines so bright. There is hope after a CDH diagnosis, and we can’t imagine our family without our tiny hero Teagan!
Matthew’s Story - Congenital Diaphragmatic Hernia (CDH)
In his short three years, this brave boy has taught us more than we ever could have imagined. He lives life to the fullest and touches everyone's heart. We are so very proud of all of his accomplishments!
Landon’s Story - Congenital Diaphragmatic Hernia (CDH)
CDH is just a part of who my Landon is now, but because of what he has gone through, he can do anything. Landon is a survivor. He is a CDH survivor. He is an ECMO survivor.
Wyatt’s Story - Congenital Diaphragmatic Hernia (CDH)
Wyatt doesn't let anything stop him! He is full of energy, loves being outside, swimming, fishing, and playing baseball! He is such a fighter, and we know that he is destined for great things in his very bright future!
Bailee’s Story - Congenital Diaphragmatic Hernia (CDH)
I had never heard of CDH before that day. Our original OB was wonderful and got us into a specialist the next day. We spent the next 20 weeks attending weekly appointments and meetings with different specialists before Bailee was born at 39 weeks in a pre-scheduled delivery.
Pippa’s Story - Congenital Diaphragmatic Hernia (CDH)
You learn so much in those first few days. It's so much to wrap your head around. But we clung to the smallest things people said that gave us hope.
Brody’s Story - Congenital Diaphragmatic Hernia (CDH)
He has an extreme love of all sports but especially baseball and golf. I've been told his hand-eye coordination in these sports is as good, if not better than a 5-year-old at only two years old! He continues to amaze us with his sweet personality and talents.
Aero’s Story - Congenital Diaphragmatic Hernia (CDH)
After 57 days in the NICU, we were able to come home a couple of weeks before Christmas. October 11th will forever be a day to remember!
Rayline’s Story - Congenital Diaphragmatic Hernia (CDH)
She might be small, but she has a strong soul. She fought for her breath and her life from the minute she was born and refused to give up. I'm so proud of her and thankful for being her mom. She is a Tiny Hero, and I'm proud to say that I'm the mother of Tiny Hero.
Bella’s Story - Congenital Diaphragmatic Hernia (CDH)
Today we can't imagine life without our Bella. She injects so much love and energy, and shenanigans into our lives. Since we've been quarantined, she's really taken advantage of the extra time we have for her. This time has been so crucial for her development.
Jorja’s Story - Congenital Diaphragmatic Hernia (CDH)
She has defied all the odds. Home is where she belongs with her big brother, Leo. We are forever proud and grateful for her. There were many times we thought it was the end. We can't say thank you enough to all the healthcare workers for saving our warrior princess.
Declan’s Story - Congenital Diaphragmatic Hernia (CDH)
Declan is now 16 months and just thriving, and at every appointment, he amazes his pediatrician. We are very proud and thank God every day for our Tiny Hero!
Sawyer’s Story - Congenital Diaphragmatic Hernia (CDH)
Sawyer went home on day 26 with reflux medication (omeprazole) and has had no issues since. He is now 1, weighs 27 pounds, and is 78 inches long. He's had no feeding or weight gain issues and has eaten over 100 different foods!
June Bee’s Story - Congenital Diaphragmatic Hernia (CDH)
Today, she thrives and still beats all odds. My baby is 2 now, but she's still our Tiny Hero.
Aubrey’s Story - Congenital Diaphragmatic Hernia (CDH)
Fast forward two months, and Aubrey is a happy and healthy six-month-old. She is eating pureed fruits and vegetables along with breast milk, working on rolling over, and having the time of her life in her new bouncer.
Emery Aaliyah's Story - Congenital Diaphragmatic Hernia (CDH)
She’s our strong baby girl, and we are so proud of our little warrior. We are still shocked and amazed by everything she went through. We look at her everyday thinking back on how far she’s come. We are truly blessed to have our daughter.