CDH Stories
Emma’s CDH Story
Since we had no idea about her diagnosis ahead of time, nothing was prearranged or planned. We were blessed with friends and a church family that helped us financially. We are thankful for our baby girl, Emma, and would do this crazy all over again for her. She is so full of life and truly one of the strongest girls I know!
Amelia’s CDH Story
Amelia is almost four months old and absolutely thriving and doing ALL the growing baby things. I look at her with such admiration because all I see is strength in such a little body. Her big brother is her best friend, her dog is her biggest protector, and her parents are grateful each and every day for our wonderful, resilient - Tiny Hero.
Dawson’s CDH Story
Now, at two years old, it's hard to believe Dawson ever faced this battle. He is strong, resilient, and busy. His favorite toy is any kind of ball (or anything he can find to throw!). Dawson is thriving in all areas of life, and we are so very grateful.
Arden’s CDH Story
Despite CDH and all the other challenges she has faced, Arden brings joy wherever she goes. She is the HAPPIEST child. We are thankful for my cancer because, without it, she wouldn’t be here. Arden has changed my life, and I am forever grateful we get to grow old together.
Addison’s CDH Story
At exactly three weeks old, Addison got to come home. She is now two months old. She loves all the attention and is starting to find her voice. I know when you get the diagnosis, the worst thoughts come to mind, but life does not always turn out to be the worst-case scenario. I am so proud of my CDH warrior!
William’s CDH Story
William is so much more active and hungry, and his communication skills have skyrocketed! He is a super active toddler who just turned three years old. He is happy and curious and wild! I cannot wait to see where he goes from here!
Jerry’s CDH Story
Jerry is a true miracle! He is very active and goofy. He is talking, jumping and rocking, rolling, crawling, pulling himself up, sitting up, and trying to stand up - all the normal baby things. We are about to celebrate his one-year birthday!
Aspen’s CDH Story
Aspen is a bubbly, happy, and very curious 2-year-old who loves going to the playground, playing with Play-Doh, doing Legos, and going shopping with her parents! Her story proves that CDH diagnosis doesn’t define your child and their future in any way.
CC’s CDH Story
We cannot thank the CDH staff at Boston Children's Hospital enough! They saved CC's life, and after almost 114 days, we are home.
Stefano’s CDH Story
Though our CDH journey, by some standards, may seem less severe, it was emotionally taxing. Yet, within our shared CDH community, I find solace and strength. My heart beats with yours, and I send prayers for healing to every CDH family.
Maximilian’s CDH Story
For the families who get this diagnosis, with the right team, strength, support, love, and belief in a positive outcome, you will emerge in a world that seems unimaginable at first. The outcome is so different from the beginning. It's a slow, brutal path in the starting weeks and months, but seeing this blessing in action now makes those days feel like a distant memory.
Weston’s CDH Story
When I tell people about his story, they are shocked that this is the same baby. He is a thriving, happy, and healthy little guy. Weston is a speedy crawler and pulls himself to stand. He just started cruising along tables and couches. Some of his favorite things include watching Miss Rachel on TV, chasing after our dog, playing with cars, eating French fries, and laughing at his big brother!
Oliver’s CDH Story
I am hopeful that our complicated and rare journey can help someone someday. Oliver is one in a million and truly a miracle! We feel blessed to have our baby alive and thriving. I am so thankful for the many people and doctors/nurses who have helped us along this crazy and stressful journey.
Margaux’s CDH Story
Looking back at Margaux’s journey in the hospital, we are reminded every day how strong and resilient our precious girl is and continue to be thankful for the lifesaving care she received.
Sonny’s CDH Story
Sonny has blossomed into a perfect, beautiful soul, reminding us that life's challenges can be conquered with unwavering faith and a positive mindset. Your presence in our lives is a daily reminder of the incredible strength that resides within you and the incredible love that surrounds you.
Baylee’s CDH Story
Baylee has been living it up at home with her brother, getting stronger by the day and thriving every day. She is still very small, but that doesn’t stop her from doing anything. Baylee is now a year old and is the sweetest, most independent baby ever. This journey was not easy at all, but these babies are so strong and worth every bit of it!
Luca’s CDH Story
Luca is a very happy boy who loves to laugh, smile, make noises, and babble/screech, especially at his brother and fur siblings. He loves to wave at everyone all day long, including himself. CDH can't stop Luca from always smiling and bringing smiles to everyone he meets!
Morgan’s CDH Story
Since I have small lungs, I found hobbies I can do without too much strain. I enjoy puzzles, music, and almost anything crafty. I make my own holiday cards for my friends and family. Even though my lungs are scarred, I love to sing.
Vance’s CDH Story
Vance is active and healthy — he plays ice hockey and soccer and enjoys competing in 5K runs. He is outgoing and social, always making others laugh and smile. His pediatrician once told us with CDH, no two stories are the same, and Vance is writing his own.
Copeland’s CDH Story
Now our sweet boy is almost seven months old and is starting to rock his feeds orally with only needing to use the G-tube once through the day and sleeps all night, so he is fed through the tube at night. He is finally reaching his developmental milestones and is such a sweet and happy baby.